Sensory Processing & the Challenges it brings

Say it isn’t so. Sensory Processing Disorder truly controls Landon’s life.  However, control doesn’t have to have a negative impact. It can force you to think “outside the box”, which for Landon, has made him more creative! From what he eats, what he wears, his anxiety, the ability to touch certain items and more, it all has a daily effect on him.  However, this control doesn’t hinder him from having a ” normal” life. And I put “normal” lightly as I fully believe there is no single entity that we should define as normal. He makes friends regardless of his social anxiety. He learns ways to cope to loud noises. He focuses on what textures he likes versus not dwelling on those he doesn’t. Even his open bite posture causes him the inability to make certain sounds. Somehow, he manages to say words that he just shouldn’t be able too ( shock to his speech therapist as well). He truly is a determined little man, who I couldn’t be any prouder of.

At the eye doctors picking out his frames

At the eye doctors picking out his frames


Here we are again. Sensory Processing has  added another “challenge” to his list. And again, I say “challenge” lightly as each challenge only makes you more unique. LANDON NEEDS GLASSES. Not because his vision is impaired, but for a whole other reason. Technically, his vision is 20/20. It’s when the environment effects his vision, (i.e. wind, light, glare) the glasses are needed. This is especially true for light. At his vision appointment, we found out that Landon has larger than normal pupils for any adult my age. Meaning, it lets more light in. Landon has always been sensitive to light as most sensational kiddos are, so having pupils that cause more light to travel through his eyes only exacerbates his visual sensory challenges.

Off to School with his new Glasses!

Off to School with his new Glasses!

We all know schools are infamous for their horrible track UV lighting that would give anyone a headache. But those with sensory challenges are more susceptible to headaches, decreased concentration and poor vision because of this. To read more about how a classroom can affect kids with sensory challenges, click here. Landon’s headaches were so bad, I knew something had to be wrong. Here we are today with glasses that have a mild prescription, uv protection and scratch resistant. I am hoping this alleviates his headaches. He has been a trooper through all of this. Even at the 2 hour appointment, he let the doctor poke and prod all around his face and get very up close and personal. He was so well behaved and I was so very proud. He was even excited to pick out his very own pair of glasses. Now that  school vacation week is over, the true test will begin. Will he remember to wear them? Will he lose them? Will he break them? Will they help with the glare & squinting?  But honestly, I only care that he is not upset about this new challenge he has. He realizes that people are unique and his uniqueness happens to also include wearing glasses!

~Namaste~

Being Goofy with our glasses!

Being Goofy with our glasses!

Wordless Wednesday- School Picture

School Pictures can go terribly wrong. Especially when you have a moody 6 year old who likes to get what he wants at all costs. For example, Landon was less than thrilled with the background I chose. He wanted the waterfall & trees. So- he let me (and the photographer) know that he wasn’t going to cooperate. If this picture isn’t a giant F@%K You Mom, I don’t know what is.

Showcasing for your enjoyment- Landon’s Kindergarten Picture 2014

10253967_10152061240016395_6003244654360714909_n

10 things to tell a woman before she has a baby

10 Things to tell a woman before she has a baby

1. You should relish in the fact that you can go on a 4 hour road trip and hold your urge to use the bathroom. Really.

2. Next time you see a mother sneeze and not cover her nose, don’t roll your eyes. She had to make the hard quick decision to tighten her legs or cover that nose…..I always pick the first…..it’s a hard decision you just have to live with!

3. Enjoy those perky little things on your chest! After a baby, invest in a really nice push-up bra…..or don’t…….either way- Enjoy them NOW!

4. You look gorgeous in that designer silk  blouse, white pants and high stilettos! Learn to embrace black yoga pants, flowy cotton shirts and slip on boots- it’s your new uniform!

5. Gas & heartburn. Welcome to your new Reality. If you experienced these before, well then, get ready for some an insane firework display to happen inside of your body. Have fun!

6. If you want a clean house, hire a maid. Or plan on cleaning every night when the moon is high, the babies are silent and you are practically dead. Zombie-like dead.

7. Invest in stain remover. I repeat, invest in stain remover. Pronto!

8. Eating a quality meal consists of being the official taste taster of all the food your baby consumes. Yum…….bright orange carrots that taste like shit…..Delish!

9. Grocery shopping (alone) is the best thing ever. If you can score a Target shopping trip- well my lady friend, you just won the mommy lottery!

10. Prepare to be so overwhelmed, filled to the brim with love, tired, grumpy, overjoyed the next minute and willing to embrace all the challenges and rewarding moments that come with being a mom!

What do you wish someone told you (honestly) about what to expect when you were expecting????? Share- I would love to know!

Growing Pains

Growing pains. All kids get them. As their parents we will never really know how painful they actually are to our kiddos. The thought of my kid going through any pain at all, just makes my heart ache. Last weekend Landon was in such intolerable pain we almost went to the hospital. He couldn’t walk. He needed us to compress his ankle & shin for almost 1 hour. This was the only thing that helped him. Even with us holding his ankle, massaging where he asked and a dose of Ibuprofen, he was hysterical. We were at IKEA,  drove almost 90 minutes in the rush hour traffic all to be there for 5 minutes and leave. We left the IKEA parking lot and had to pull over at a  local Walgreens. We sat for almost 2 hours until we began our journey home.

Long story short: after the  doctors appointment the next morning,  we all came to the conclusion that it was either a charley horse gone wrong, or just very bad growing pains. But regardless of what it was, the doctor explained to us that it was probably almost as painful as a minor fracture or pulled ligament. This is due to sensory kiddos feeling pain in different way than their peers. So, of course my heart broke even more when I thought about that.

I always knew he felt his emotions differently from others, but never actually stopped to think about physical pain. As much it sucks seeing him fight though his emotions, try to explain his feelings and feel tremendous amounts of pain, I know all these things will make him a stronger person, one with empathy no doubt. Does your little one have growing pains? What are some home remedies you do to calm them? Share away- I would love to know!

2195_51490816394_5440_n

THEN- 18 months

1391664_10151698314691395_1918230354_n

NOW- 6 years

Art Therapy – Wordless Wednesday

Art Therapy: Art is an amazing thing. I could talk all day about the benefits of doodling, painting, crafting, sculpting and all facets of art. But- I will just show you how art transcends age limits, disabilities, handicaps: for it is a universal language. One you can interpret how you see fit. Landon had his Intro to Watercolor class today at the Warwick Museum of Art. He went this summer as well- the only 5-year-old in the program designed for 6+ and up. His artwork caught the attention of the instructor and she knew he would excel and take it seriously. He was back for more during February vacation! Here are his pieces that he named himself:

Dragonfly- Elanna's memory

Dragonfly- Elanna’s memory

Flower Brought to Life

Flower Brought to Life

Sunset over Waves & Rock

Sunset over Waves & Rock

I love Colors

I love Colors

 

 

 

A day in the life with Sensory Processing Disorder

Nov 19th 2007 Landon's Birthday

Nov 19th 2007 Landon’s Birthday

Let’s start with some fun info on Landon.  For starters, Landon was born full term on November 19th 2007. He was almost 9 pounds and 21 1/2 inches long. Not a small baby by any means. He was born healthy despite me having Maternal PKU and having a very high risk & difficult pregnancy. He just beat the odds from the beginning. I know he will continue to do so throughout his life.

Landon’s favorite things:

Landon loves many things. He develops obsessions to things very easily, just like his momma, who has her own obsession with Coke and her 15 year old pillow! The pillow is just so damn comfy and Coke – well it is the best thing in the world (next to Landon of course-Lol). At this time, Landon loves Curious George, trains, bedtime stories, his blanket, chocolate milk and swimming. Sounds like your typical 2 1/2 year old boy. I am sure in a few months- he will add onto these and the list will be in the double digits!

Landon’s typical weekly schedule:

Landon is a very busy little boy. We have been working with Early intervention through the city of Warwick since November 2009. We attend many programs at the center as well as home based therapies every other week. We are currently enrolled on the wait-list for the Brown Center for an evaluation appointment for his Sensory Processing Disorder and his intellectual gifted abilities.

Mondays- Landon has Talking Explorers class from 11-12:30pm.  It’s a child only class and has worked wonders for Landon’s separation issues. Every other Wed- Landon has his Occupational Therapy and a Parent Educator come to the house. Every other Thurs- Landon has in-home speech therapy. Starting soon- Landon will be in a communication/behavior class on Tuesdays while Mommy is in a behavior seminar for 11 weeks. This new behavior seminar is based on “time-ins” and communication rather than “time-outs”. I am eager to learn more. As you can see, Landon & I have a fun, packed schedule during the week.

Landon’s personality, behaviors & physical attributes

Landon is a very happy boy. He is very outspoken (with the words he does know) and also with his babbling! He will try and talk to anyone regardless if he has met them in the past. You can say he is a people person. Landon also signs many things on a daily basis.    Landon is very tall for his age. He is in the 95% percentile for height and 75% for weight. He is 41 inches tall and weighs just about 35 pounds. He has long, curly auburn hair and fair skin. He is just the cutest thing ever!

Landon is going through some challenges with children his own age. He sometimes finds himself hitting or pushing to communicate because most children his age are past his verbal abilities. But, for the most part he apologizes right away and we are working to help him communicate better – even through learning more sign language. Landon has a schedule everyday and we try not to deviate from it as this is when certain “uh-ohs” may occur. He is a great sleeper,  but poor eater. These issues I will address as the blog continues.

Landon John Friedman

Landon John Friedman

 

For now, I think most of you have a pretty good sense as to who Landon is. I look forward to showcasing our activities, challenges, rewards and everyday life of being a mother to A Sensational Kid! If you ever have any questions about SPD, Landon in general or just a nice “shout-out”, please post it here or feel free to email me.

Be real,

Joy